Tuesday, February 16, 2021
Bill's Bedroom Baby Cam Monitor
Saturday, February 13, 2021
The Tonga Hut Band, Palm Springs, California 2020
This is the week Pat and I were scheduled to be in Palm Springs, California for Modernist Week.
Pat and I have been making this two week winter getaway to Palm Springs for three years now. Little did we know last year at this time, when we made our airline and VRBO reservations for this year, that the worldwide COVID pandemic would upend all our plans. Even if it wasn't for the pandemic, I couldn't have made the trip anyway because I have to devote my total attention to caregiving for Bill at this time of his life.
The video above was made at the Tonga Hut Tiki Bar in downtown Palm Springs last year on February 16th, 2020. Pat discovered that band while he was walking around North Palm Canyon Drive, the main drag in downtown Palm Springs, during one of my afternoon naps. We had a front row seat that late Thursday afternoon to this fabulous band. What a great time we had that afternoon. We enjoyed it so much we came back that night to get more. Of course it was more crowded then but we waited until we got another seat on the second floor balcony overlooking North Palm Canyon Drive in downtown Palm Springs. We also met and made some good friends with other visitors to Palm Springs who were also enjoying this band. Little did I realize at that time how much my life and the world would change in a year.
Talking to Pat this morning on FaceTime (which I do several times a day), we pledged to return to Palm Springs someday, hopefully next year. I still haven't given up the possibility of someday permanently retiring to Palm Springs, with Pat of course.
The first time we visited Palm Springs, on the advice of Nadege (another good California friend of ours we met through this blog), both Pat and I knew we have found something special. Now I know why so many celebrities and just regular folks like us retire to Palm Springs. And of course Palm Springs has a large, older (mostly men, not women like her in the Rehoboth Beach area where I live now) men.
With Bill's medical condition now that he needs a caregiver, the thought has crossed my mind that perhaps someday I will need a caregiver. I would rather have a caregiver living in Palm Springs than here in a cold February Delaware. I love my home here in Delaware and all the "things" I've accumulated over the past seventy-nine years of my life (especially my artwork), but when my time comes, I want to end my days in a comfortable environment with minimal help from a caregiver.
In the meantime, I look forward to next year.
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| Pat and me in sunny Palm Springs last year during more carefree times |
Thursday, February 11, 2021
Thoughts On My New Role As A FullTime Caregiver
Monday, February 08, 2021
Bill Shaves For The First Time In Three Weeks
Sunday, February 07, 2021
Bill's Home!
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| Bill sleeping peacefully in his bedroom last night |
Bill is home!
The last two days have been a whirlwind.
Seems a lot longer than two days.
Bill was discharged from the rehab hospital in Dover where he has been staying for the past two weeks.
I had a lot of papers to sign to get him out of there. One of the concerns I raised was continuing his medications until Bill's VA automatic prescriptions were in place. I was assured by Bill's doctor the prescriptions would be called in to Rite Aid, which is the procedure the VA uses, until the vet's prescriptions are in the VA system.
We got Bill in the car without too much trouble and then we headed south on U.S. Coastal Highway (U.S. 1) to Georgetown to pick up Bill's prescriptions so we could bridge his medications until the VA kicked in.
We got down to Georgetown, I pulled up to the drive-in window of Rite-Aid, give Bill's name and date of birth and . . . . . . . . . . you guessed it. They had NOTHING. I was afraid of that. And, to add even more confusion, just as the woman at the drive-in window was telling me that they didn't have Bill's prescriptions, I got a phone call from the home health aid worker, she was AT OUT HOUSE. I wasn't expecting her on Friday. She said she was coming Saturday. What to do? I was confused.
I made the decision to go home and meet up with her. She was waiting in her car when we drove into our driveway.
I invited her in our house. Gave her all the pertinent information and filled out a lot of paperwork, again. Friday was a day for paperwork. She said the home health aid worker would be coming in next Tuesday and Thursday (I think). This is a physical occupational therapist.
After signing all her documents, she left and it was just me and Bill now. How to navigate with a 180 pound man who has a great deal of trouble getting to a standing position? And the bathroom? I'm a bit squeamish but like my friend Glenn, who recently lost his longtime partner/husband, I quickly got over the squeamish part. You do what you have to do.
The first night home was hell. I didn't want Bill going downstairs because of his weakness. I put him in the side bedroom. But there was a problem, Bill hasn't slept in a bed for years. He sleeps in a recliner type lounge chair. My brother, his wife and their daughter that lives them sleep in giant lounger chairs. I don't know how they do it, I couldn't sleep that way.
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| Bill in the bed that didn't work |
I undressed him and managed somehow to swing his legs on the bed, which was his old bed he uses when he lived in Pennsylvania, when we could all walk around and do normal things like it seems everybody else does now. Oh for those days without the physical infirmities we have now.
Once I got him in the bed then he said he had to go to the bathroom. Up and out of the bed I had to swing his dead weight of 180 lbs., which was very painful for him not to mention my back. The thought ran through my head, "Did I take on too much? Can I manage? What happens to Bill if I can't manage?"
I got him in the bathroom and put him on one of those commode fixtures that the rehab unit sent me by mail. Which I had to put together, which I hate putting things together. Thank God for You Tube.
Twice he had to go to the bathroom. Twice. I had undress him for bed. Normally he sleeps in his clothes.
During the night I went into his room to check on him and he was lying there, starring at the ceiling, clearly uncomfortable. Oh my, this isn't going to work.
We managed somehow to get through the night but neither one of us got much sleep. I had to figure out a new routine for Bill. We decided to try those Thirteen Steps to his basement bedroom. We did that later in the day but first I had to get gas so I took Bill for one of his rides that he so loves. Bill has some difficulty getting in and out of our car but he manages. In fact when we came back he took his walker and went for an exercise walk himself down around the cul de sac in our development. Yesterday was a mild and sunny day and not too windy (48 degrees).
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| Bill with walker outside |
By the time he got back he was pooped. Time to try my walk in shower with a bench. I knew someday that built in bench would come in handy.
That was another ordeal getting him undressed and keep him warm while I wetting him down with the extension wand on my show head. So tiring for Bill, me too!
After we got in Bill had to rest. I let him rest for about an hour then suggested the try The Steps. Bill was all for that. We proceeded to the steps and very carefully, Bill grasping onto the banister and me holding onto him to steady him, we descended down the steps to his man cave bedroom which he has as a shrine to me (not my idea).
Oh he was so happy to be in his bedroom, finally!
I told him I repainted the wall and thoroughly vacuumed cleaned all the corners. He had a almost brand new bedroom.
Bill slept in his bedroom last night, fully clothed which is the way he's been sleeping for the past ten years or so.
I woke up about 2:30 AM for my nightly bathroom visit and I went down to see how Bill was doing. He had the light on and wanted to go to his bathroom. In his bathroom we don't have the contraption over the toilet, instead we used the pee plastic bottle that I absconded with from one of my hospital stays (I forgot to bring Bill's plastic pee bottle down from the rehab hospital, too much going on that day).
We managed with the bottle. I actually have to aim his "thing" in the bottle or else he goes on the floor thinking he went into the bottle. Sorry to be so gross but just giving you an idea of the actualities of home health care. You do everything and I mean EVERYTHING. My back was killing me.
I managed to get back to sleep until sometime after 6 AM this morning. I went down to check Bill again and he had managed to go to his bathroom. He said he used the bottle but he only got part of his pee in the bottle. Some pee ended up on the floor (thank God I have a tile floor in his bathroom, and the rest he got on his yoga pants, which I promptly took off and put in the washing machine. I've used that washing machine this week more than I have in the past two weeks combined. But I was so glad he managed to go to the bathroom by himself. Now we have a routine. I just don't want him to go on the wall to wall carpeting that he has in his bedroom. If he can managed that short distance from his bedroom to his bathroom, that's super! I was so relieved.
However, I still had one unresolved problem. How could Bill quickly get in touch with me if he had an emergency? I would frequently check in on him but how would he communicate with me he needed my help other than hollering. My bedroom is at the far end of our house and he's in the basement. Pat came up with a solution, a baby camera. Viola! I ordered one from Amazon. It will be here Tuesday. Thank God, I can monitor him on my iPhone. Another thing I have to setup but something that is totally necessary to give me peace of mind. With a baby camera all he has to do is say "Hey Ronnie!" and I'll hear him on my iPhone just like my Ring doorbell.
It starting snowing outside while I was writing this very long blog update. Bill's sitting in our sunroom now, cozied up with multiple blanket and his new ski cap, watching the snow falling gently. We have no where to go today. Just me and Bill, caring for one another.
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| Bill snoozing in sun room as snow falls gently outside |
Thursday, February 04, 2021
Bill Practicing Getting In And Out Of Car
Tuesday, February 02, 2021
Bill's Bedroom Ready For His Return Home This Friday
Bill called me from his rehab this afternoon. He sounded almost like the old Bill I know and love.
He also called yesterday and sounded like his old self.
He said his physical therapy is coming along, he walked two hundred feet today. That is great news! However, he is still at risk of falling down. But it is encouraging that he can walk and even do steps. Maybe he can even go down the thirteen steps to his bedroom.
Over the weekend I thoroughly cleaned out his room, vacuuming the hell out of it. I dusted every thing off. And, a biggie since I hate to paint, I painted his corner. The wall was so dirty with his fingerprints from putting up all those pictures of me and other pictures that give him comfort. One picture is of Bill and my Mother. He loved my Mother and the feeling was mutual, my Mother was best friends with Bill. They were only four years apart in age.
Also Bill's favorite eagle picture is now up behind his bed and one of his favorite oil paintings, of Baltimore Orioles birds.
This Friday Bill is scheduled to be discharged from the rehab hospital that has been his home the past two weeks. He is so anxious to come home as I am to have him here, where I can take care of him.
This afternoon I also received a call from the home health care agency. They're setting things up also to come and help me when Bill comes home. They said they were "stretched" because of COVID and no one wanting to stay in facilities where they could catch the virus. I am so fortunate to have Bill come home again. I thought I had lost him back on January 14th, when I found him unconscious on the floor of this same bedroom. He had hit his head on the wall coat hanger seat piece of furniture that I bought from Yield House many years ago. I've moved that out of his bedroom to give him more space. No loose throw rugs either. But the wall to wall carpet stays. We'll managed with his walker and me helping him every time he has to move.
Two more days and Bill comes home.
Happy 85th Birthday Ron!
Friends! Here is my annual birthday video. Here's hoping I can make another video next year!
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