I don't remember who came up with the idea of installing one of those baby monitors in Bill's bedroom (I think it was Pat), but I installed one on Sunday. It wasn't easy. My head hurt after spending about four hours trying to figure out how to configure the baby monitor camera with my iPhone but I got it done. I'm finding that I'm accomplishing a lot of tasks that I wouldn't even have attempted before my caregiving of Bill.
As I type this blog this morning at 7:12 AM I am monitoring Bill on my iPhone, waiting for him to get ready to get up. Today is shower day. He hates taking a shower. It's an extra effort for him. I've had to remind him it's a lot of extra effort for me because I have to undress him, all the while he's groaning and complaining, get him in the shower, wash him down, then dry him then (this is the hard part) getting him dressed again. He does feel a lot better after a shower but it is an ordeal for both of us.
We're settling into somewhat of a routine here at home. I have all his medications lined up on the kitchen counter. He has morning medications, evening medications and bedtime medications. I have a little chart with dates and check marks to keep a records of the medications I give him. This is a full time job folks. And as of yesterday, his health aid worker informed me that I'm going to have to take his blood pressure every morning before I give him his a-fib medication.
Our routine consists of me helping him to the bathroom three or four times a night (I get up that often myself). He can go to the bathroom himself during the day but sometimes I help him.
First thing in the morning I put on his compression socks. He hates that. My back hates that too, it's a killer getting those socks on. Now his legs are more swollen than ever from edema. The health aid worker yesterday was concerned about that. She told Bill that he has to do more exercise with his feet while his sitting and keep his feet elevated. Of course Bill resists, as is his nature. He doesn't even want the home health aide worker coming in but I convince him that it is in our best interest. She is helpful. I told him it was either the home health aide working visiting us or he's in a nursing home. That seems to get his attention. Bill is stubborn but with patience I can usually convince him that this is the best situation we're in now.
After I put Bill's compression stockings on we go upstairs (yes, Bill is climbing the stairs) for breakfast. I help Bill to his recliner chair in the sunroom and to elevate his legs. Yesterday he finally figured out who to recline the chair on his own. I was doing it for him. Then I give Bill his morning medications first. Bill always has the same breakfast, oatmeal with half and half, a lot. Very watery, just the way he likes it.
After breakfast we settle in for the rest of the day. The home health aide workers usually come in between 10 and 11 AM in the morning twice or three times a week. They only come in on the weekdays, never on the weekends.
Yesterday when the home health aide worker came in I was making carrot ginger soup for Bill, his favorite. Mine too. The whole kitchen and sunroom caressed the aroma of that subtle, gentle pureed soup. I'm surprise the home health aide worker didn't ask what I was making.
After the home health aide worker leaves, Bill either checks his iPad or naps in his sunroom recliner. I try to snatch a little time for myself in my home office just around the corner from the kitchen.
Then it's lunch time. Yesterday was good with the carrot ginger soup. Then we go for our daily ride. Usually I drive up Route One to Milton and our local Food Lion, which was recently revamped. It's no Wegmans but it is a good supermarket. Good prices and I can usually get what I want.
Something interesting has happened since I began my full time job as caregiver to Bill, I've lost my sweet tooth. I just have no desire for desserts. Gone are the cakes and pies I used to make. In the process I've lost fifteen pounds. I'm down to 159 pounds now from a high of 174 pounds. What a way to lose weight huh? Well, I don't look any better. All this stress has gotten to my face, my iPhone doesn't even recognize me anymore.
Just got back from giving Bill his biweekly shower. Oh how he moans and groans about the effort it takes to undress him, get him in the shower, lather him down, rinse him off, dry him then dress him. I reminded him that it's taking an effort on my part too (my back). But Bill did admit that he felt a "lot better" after his shower. Positive feedback, always helpful after a major effort like this.
"Kathy", the home health aide worker just called. She'll be over between 10 and 11 this morning. Bill moans and groans about those visits too. I explained to him this is much preferable than living in a rehab facility or nursing home and having health aides check up on him. I got his attention. Bill is a little spoiled, always has been since we've been together. He just never has liked to have "company" over wherever we have lived. We have gotten into many arguments over the years because of this quirk in Bill's personality. I thought when I partnered up with someone we would have company over for dinner, travel together, etc. Was not to be. I adjusted over the years. Perhaps that's one of the reasons I like my friendship with Pat. He likes to travel with me, have company over (entertain) and "go out" to different venues like concerts. I met Pat late in my life and began doing these things normal couples do, it's nice.
That's it for today folks, have a great day!
11 comments:
It's amazing how necessity brings out the best in most of us.
You are doing a magnificent job. The love you both share beams through your recital of your day.
Bill is a very lucky man to have you in his life.
You are handling the routine part wonderfully. Bill seems to be improving and happy. I was trying to leave you a video but not able to load, my granddaughter the Hospice nurse, said to slip a small ziplock or plastic bag over the foot, before sliding the leg hose on, it helps them just simply slide on, and no wrestling with them.
Hope this helps.
I see the grumpy old men have a routine...That is great...Having worked in a nursing home for years in my younger days, my patients hated shower/bath days...The shower room was basically a tiled room-top tp bottom-on all sides- with a shower wand...You just roll the shower chair in there and go to town...Easy if they're cooperative and hell if they fight you every step of the way...Some of them were like cats-hated to get wet...Yes, the baby cam was Pat's idea...I suggested a method for Bill to notify you when help is needed...The baby cam picture looks great...I am glad to hear that you have a home health worker at the house to take up some of the slack...Sometimes you have to put your foot down...Either we get help or you go into a nursing home...Easier said than done but one must face reality...Things should get smoother as the routine is cemented...Be well...SELF-CARE is important...
https://youtu.be/2UdZuDkaspY Try this link Ron...
Based on what I see in the video, you need to be sitting on a low stool or footrest while you are putting on Bill’s socks and probably helping him with other things. The way you are bending over is rough on your back, I know it would be on mine. I think I see one in the lower right corner of the video that you should be using.
The bedroom camera sure has good resolution, the video image is very sharp.
Does the shower have a seat in it for Bill to sit on? I couldn’t get along without mine.
I think you are doing a great job, hopefully it will get easier with time and practice.
Jim
lexie,
I am so thankful that I have Bill here at home now. I thought I had lost him last month when the EMT's took him out of here unconscious on a gurney. Sure, my life has changed here at home now that I am a full-time caregiver for Bill. But I would rather have him here at home instead of an impersonal rehab facility.
Thank you for your comment.
Ron
A Brit in Tennessee
Great suggestion, using a Ziploc or plastic bag to help slip on Bill's anti emulsion stockings. I will use that tomorrow!
Ron
JIm,
I actually do use that stool. It's just that during that video I didn't use that stool. And yes, not using the stool is a killer on my back. That's why I brought the stool in Bill's bedroom. Bill's shower has two seats. He still needs something to grab onto though. We're working on it. These new routines are getting easirer with routine and practice.
Thanks for your comment.
Ron
Victor,
Bill hates shower days but he did say he felt "good" after his shower this morning. I can imagine what shower days were like at the nursing home where you work. What a job you had at the nursing home. I couldn't do it.
Today we had a problem with his recliner chair. He couldn't figure out why it won't recline for him (he doesn't have the strength) but does for me. I told him it wasn't important, I could always push back his chair. But he wanted to fight me on it After about a half an hour he finally gave in and let me do it. These things wear me out. I'll have to try and avoid these situations in the future. Don't have time for it.
The health care workers aren't taking up any slack. I still do and the physical activity, but they help with suggestions, which is very helpful and I appreciate it. I'm still working on Bill's bathroom routine. If I just can trust him to go to the bathroom by himself that would take a load off of me. He still gets confused.
Ron
Wow Ron - love all these comments! And it's true as you said that your phone doesn't even recognize you anymore. When you face-timed the other day I wasn't sure whom I was speaking to LOL. And keep in mind - you can never be too rich or too thin. I think that'a a Hollywood saying.
Pat
Hey Pat!
A big change this year from last year at this time huh when we were living the carefree life in Palm Springs? I hope next year is a LOT better. In fact, I hope we're here. With this pandemic, and the new virus strains, who knows what life will bring us. One day at a time.
Ron
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